Rs 6 crore help! Modi government shows big heart for 5-month-old girl suffering from rare medical condition

It's a very heart touching story wherein PM Narendra Modi-led Central government has shown a  big heart for 5-month-old girl suffering from rare medical condition. Modi government has waived import duty and GST of Rs 6 crore on medicines for a five-month-old girl suffering from a rare medical conditioSpinal Muscular Atrophy.
5-month-old girl, Teera Kamat, admitted in a suburban hospital, suffers from Spinal Muscular Atrophy in which a complete breakdown of nerve cells results in zero control over muscle movement.

Her parents, Priyanka and Mihir Kamat, had written on social media about their child's fight with a debilitating ailment, leading to fund raising as well as appeals to the Union government to waive import duty and GST on medicines.

Among the medicines is Zolgensma which targets the root cause of SMA and which has to be imported. In their social media appeals, Teera's parents had said that 23 per cent import duty and 12 per cent GST added Rs 6 crore to the cost of Rs 16 crore that the treatment entails.

Former Maharashtra CM and popular BJP leader Devendra Fadnavis, on February 1, had written to the Centre requesting a waiver of import duty and GST.

"I would like to thank you from bottom of my heart for extremely humanitarian and sensitive approach and quick action for exempting customs duty for importing life saving drug Zolgensma for five month old Teera Kamat from Mumbai," Devendra Fadnavis said in a letter to the Prime Minister's Office on Tuesday.

Devendra Fadnavis has played really a big role in the entire process of waiving Rs 6 crore for the little girl Teera Kamat.

teera_fights_sma instagram post reads, "The events of the last few days have strengthened our faith in our govt. & humanity. We are proud citizens of India, and this is why.

Y'day, The Min. of Finance, Dept. of Revenue issued an ad-hoc exemption order on behalf of Teera to direct the dept. of customs to grant a customs duty & GST waiver on the import of Zolgensma. Concurrently, the Health Commissionerate of the state of Maharashtra issued certificates for custom duty & GST waiver.

Special thank you to Hon. PM @narendramodi ji for personally intervening & guiding the concerned depts. on urgency of the matter. Your attention is truly appreciated & we are grateful to you & the country for your help. Thank you PMO India, Hon. FM @nsitharaman ji, Hon. Min. @drharshvardhanofficial ji for hearing our case. Huge thanks Shri @devendra_fadnavis ji for the letters of support & for advocating on Teera’s behalf. Thanks Shri @gadkari.nitin ji for providing your time & valuable guidance.

 

 

 

 

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A post shared by TEERA M KAMAT (@teera_fights_sma)

Special thank you to CM Shri Uddhav ji & CMO who relentlessly helped us get attention at Aarogya Bhavan to get the required papers signed swiftly. We have been blessed with your kindness & truly appreciate your help. Thank you Anilji & Kirtikarji who advocated on our behalf to CMO. Thanks Kharage ji for help on the ground & the thoughtful follow up.

Thanks @supriyasule tai for meeting with us & providing us with key information. Thanks Sonali tai & Prajakt Tanpure dada for helping secure this meeting & support throughout.

This post will not be complete without special mention of @thisisnileshdivekar ji & Harish Kumar ji. While we have been fighting alongside Teera on the medical front, they have been on the ground getting the job done. We have no words to describe the gratitude we feel towards your compassion & commitment towards our little one.

Special thanks @harshadaswakul for getting us in touch with the right people at the right time.

Thanks to the countless unnamed people who worked behind the scenes. We may not have spoken to you personally, but we appreciate your help.

Thanks 1L+ donors who made this conversation even possible. Your love for Teera is why we wake up everday to fight #sma."